Author: Amy Jenkins

At 57, Anne has faced numerous challenges living with a degenerative disease and arthritis, but her spirit of independence has always been unwavering. Over the years, she has relied on the Consumer Directed Services (CDS) Program to assist with personal attendants, allowing her to live comfortably in her own home. But when her apartment complex became a source of distress, Anne realized that she needed more than just daily living assistance.

Anne’s troubles began when she encountered mistreatment from her apartment complex. The property manager repeatedly denied her necessary accommodations, ignored repair requests, and discouraged tenants from filing complaints. When the situation reached a boiling point, Anne faced a verbal confrontation with the property manager that left her feeling unheard and unsupported. She knew she had to take action, but wasn’t sure where to turn.

That’s when Anne reached out to Liz, her Independent Living Case Manager. With Liz’s guidance, Anne gained a better understanding of her rights under the Americans with Disabilities Act (ADA) and how to stand up for herself. Liz provided Anne with the resources she needed, and together, they filed formal complaints with state and federal agencies.

The fight wasn’t easy, but Anne was determined. By March 2025, her efforts paid off. The property management company was fined for failing to provide essential accessibility features, including ramps, and was required to repair unsafe conditions in the complex. After months of neglect, Anne’s plumbing issues were also finally addressed. More importantly, Anne gained peace of mind, knowing that retaliation for filing complaints was illegal and that her voice had been heard.

Anne’s story is a powerful reminder of the vital role Independent Living Centers play in advocating for people with disabilities. Through advocacy and support, they ensure that individuals like Anne have access to safe, fair housing and the confidence to stand up for their rights.

In Anne’s own words: “Luke 1:37 says, ‘The word of God will never fail.’” With her victory, Anne’s faith in herself and the system has been restored. Empowering independence, one victory at a time.

At WILS, we believe that independent living is a fundamental right, and that everyone deserves the opportunity to live life on their own terms. Edward’s story is a powerful example of how advocacy, support, and determination can help someone achieve the independence they deserve.

Edward, who has been a participant with WILS since 2021, faced a challenge when his care plan was reduced, cutting back the hours of support he relied on. His daughter, Joni, reached out to WILS Independent Living Case Manager, Kim, to express concerns about how this reduction would affect Edward’s ability to maintain his independence.

Kim quickly reviewed Edward’s care plan and saw that hours had been removed. She immediately submitted a request to the Missouri Department of Health and Senior Services (DHSS) advocating for those hours to be reinstated and even asked for additional hours to meet Edward’s medical care needs. Kim’s quick action and persistent advocacy paid off—Edward not only got all of his hours back but received extra hours due to his medical needs.

Edward expressed his gratitude by saying, “I very much appreciate the program and could not live in my home without it.”

This victory was not just a win for Edward; it also showcased the importance of having a team of professionals who listen and act on behalf of their clients. Thanks to the support he received from WILS, Edward can continue living at home, with the care and services he needs to thrive.

Edward’s experience is a reminder of how powerful advocacy can be in the journey to independent living. With the right support, individuals like Edward can feel empowered to stand up for their needs and create the changes necessary to live on their own terms. At WILS, we are proud to help individuals regain control of their lives and achieve the independence they deserve.